I have been a member of the National Osteoporosis Society in the UK for many years. I serve on their Members & Volunteers Committee, where we advise the Charity’s Trustee Board on the patient/public view of new strategies, services and documents. I also deploy my skills and experience in reviewing and writing documents concerned with the Care and Support of people who have osteoporosis (which includes myself … as I carefully type this with a broken shoulder blade and 4 fractured ribs).
My latest contribution is the Information Sheet aka Patient Information Leaflet, which explains the Charity’s recently published Quality Standards for Osteoporosis and Prevention of Fragility Fractures. This helps those with, or at risk of, osteoporosis to understand what services they should expect from the health professionals.
I personally believe strongly in the ‘patient as partner’ model, wherein the patient is fully informed at every stage of their interaction with the health services.